Wednesday, October 15, 2014
Tuesday, June 17, 2014
There’s an Autistic Guild on HabitRPG!!!!! OMG!!!
Monday, June 16, 2014
#pareach4dd Sample Tweets to twitter bomb PA Appropriations people 6/18
Below are sample tweets, with ones targeting specific PA senators and reps on the Appropriations Committees below the cut. You can see the event page with more details on the facebook event page.
Sen Jake Corman @JakeCorman
Sen Vince Hughes @SenatorHughes
Rep William F. Adolph N/A
Rep Joseph F. Markosek
Sen Jake Corman
Sen Vince Hughes
Rep William F. Adolph
Rep Joseph F. Markosek
Tweets without twitter handles
#pareach4dd - restore ID & Autism funding! No more cuts, no more waiting!
Restore $22.4 Millon in community services! People with ID & Autism deserve community! #pareach4dd
Fund PA autism services now!#pareach4dd
#pareach4dd and get us jobs- increase funding for OVR to support Pennsylvanians with ID & Autism in the workforce!
#pareach4dd and create opportunity- increase special education funding after 6 yrs without, get prepared young adults.
Support Pennsylvanians w/ID & Autism- restore the funds cut from the block grants! #pareach4dd
Call the PA Senators and Reps on appropriations committees and tell them to #pareach4dd http://ow.ly/y6vIB
Restore ID and Autism funding in PA! Tweet, FB, and call the Appropriations Representatives and Senators THIS WEDNESDAY. (More info, including scripts and sample tweets/posts will be forth coming.)
Friday, May 16, 2014
So I got the write up of the radio interview I did Thursday.
It’s… actually not horrible overall, though they misspelled my name (oh well).
Three genetic networks may play a role in autism, CHOP study finds
my parts below cut, complete with the name misspelling, if you don’t want to check out the whole article at link. I will note that the research is reported as being focused on phrama applications for helping with things like anxiety and meltdowns and things rather than the usual cure/”detection” rhetoric that usually accompanies this kind of research.
Tuesday, April 22, 2014
The Digital Purgatory Series is a story arc consisting of poems written about Aanteekwa’s entry into a digital world in which she is trapped and from which she must escape. When Aanteekwa begins th…
EEEE! I’m very excited! Nicole Nicholson has some of the poems from the Digital Purgatory series with Aanteekwa, a African-American autistic character, up! And it’s ~Sci Fi~
Thursday, April 3, 2014
Just ordered both #lovenotfear and Neurodivergent from Aromaleigh!
I am excited! Pretties!
Now if only they’d do a color for ASAN as well… Is “Acceptance is an Action” too long a name?
(links: #LoveNotFear and Neurodivergent)
Friday, March 28, 2014
Gilding Gold for Autism Acceptance.
[a plump pale hand, fingers outstretched to show nails painted golden.]
I was getting annoyed with all the “blue nails~~~” stuff in the Autism Tag, so gold it is! Will keep painting them gold all month I think. (it was less than $2/bottle at Rite aid FYI)
Tuesday, February 25, 2014
Join The Arc of Luzerne County for a conversation with Savannah Nicole Logsdon-Breakstone. Savannah began advocating at the age of 12, when her mother asked her to sit on a panel for a a state level conference presentation. Advocacy became a true passion for Savannah once she became an adult. Co-morbidly diagnosed GAD, PTSD, and ASD (Asperger’s), she worked in Mental Health advocacy before she connected with the ASD and DD communities. Other advocacy as well as community involvements have included national and state level organizations and advisories, various county level advisories, and Freelance Advocacy efforts. Savannah is an active member of ASAN (Autistic Self Advocacy Network) and SAU1 (Self Advocates United as 1). Savannah is also a Freelance Writer and Social Media Specialist. She blogs at Cracked Mirror in Shalott and you can connect with her on Twitter, Facebook and LinkedIn.
I’ll be on the radio at noon EST! come listen!
Saturday, February 22, 2014
When providers/provider groups think they are great representation of Autism issues
Wednesday, February 5, 2014
Thursday, December 12, 2013
Come on internet
I can’t be the only person who was alarmed by the ending of rainman basically being him getting wrapped up and put “back where he belongs”. We even have institutional bias in our media!
What about that recent episode of Bones that basically framed Hodgins brother with a serious mental health disability as “belonging” in a private institution. (And it’s still an institution, even if it DOESN’T have lock down.) Like. THERE ARE LESS RESTRICTIVE SETTINGS FOR PEOPLE WITH SERIOUS MH DISABILITIES. I would know, I’ve helped design policy to help protect the rights of people in less restrictive MH settings. Just. NO. (It pissed me off too much to check but I’d bet that NAMI was their resource. I. No.)
Come on, I don’t want to get into details about these specific instances! I know someone else must have written them, and I want to talk about other ones!
Sunday, December 8, 2013
AWN is doing a survey on accessible and sensory friendliness of gynecologists and/or intimate care providers for anyone who IDs as a woman OR who uses a gynecologist. The goal is to eventually have a database for Autistic women (and others who need gynecological care) to find respectful, accessible, and sensory friendly providers- or to find out if their prospective provider doesn’t meet those standards.
It’s intended to be trans friendly- so recognizes that not all women will have access to gynecological settings for intimate care because of cissexism and transmisogyny, in addition to other factors like classism, racism, etc. There are extra text boxes to include information about these issues as well. Additionally, AWN recognizes that not all people who need to visit the gynecologist are women.
So women whose intimate care provider isn’t a gyno because of their bodies (or for any reason really) are encouraged to include their provider, and those who AREN’T women but who use a gynecologist are also encouraged to fill it out!
There are lots of text boxes that you can use to be more descriptive/add notes, so feel free to include comment about anything else that impacts your experiences there- are they accessible but don’t respect your gender identity? Is the doctor great but the office aids not so much? Did you have to look elsewhere because of racism, classism, etc in the office? Is your doctor/provider great about everything BUT your sensory needs? AWN wants to hear about it! You can also feel free to use the “additional comments” box to comment about the survey itself- things AWN didn’t list that were important, wording that made you feel uncomfortable, etc.
Saturday, December 7, 2013
On December 9 we will be tweeting to AS and their many sponsors.
Hashtag your tweets with #BoycottAutismSpeaks so we can RT and please include links to our website and petition. Example tweets:
@sproutsfm Autism Speaks does not help Autistics. End your support http://boycottautismspeaks.com/why-boycott.html
@autismspeaks You can’t silence the voices speaking for #equality and #Respect We support @Boycott_AS #boycottautismspeaks #Autism #Autistic
Image Description: Blue and green image, divided diagonally. Text reads: Monday Dec. 9 Tweet for Human Rights and Social Justice #boycottautismspeaks Gaining Momentum… Find us on twitter @Boycott_AS
Twitter handles of Autism Speaks Sponsors:
Friday, November 8, 2013
Hi, everyone! I’m making a video for the Project for Awesome for The Autistic Self Advocacy Network, and I need your help!
Please submit a picture of you holding a sign with one word or a short phrase (maximum of 4 words) that describes what ASAN means to you!
Example of what I need:
You don’t have to show your face if you don’t want to. If you’re an AAC user, you can submit a screenshot/picture of your AAC device saying the word or phrase.
Screenshot taken from ASAN’s Loud Hands Video.
I want to keep the words/phrases diverse so if there are multiple submissions with the same word/phrase, I will pick the first submission for that word so please be creative if you want to be in the video!
Submissions need to be in by December 12.
Since tumblr has been stripping alt text: [Image above is of an individual holding up a white board over their face that reads, “Autistic and BADASS.”]
Project for Awesome is a really great crowd sourcing charity drive. participants create videos for a organization they want to support, and others vote for the cause they think is important. There’s also a fundraising portion. At the end of the voting period, the money that Project for Awesome raises gets shared between the organizations supported by the top 10 videos. Last year each winning org got $40k+.
(Image description: a white graphic with a purple box with white letters angled at top left which says “Volunteer Wanted.”
To the right of the purple box it says in all caps, “CONTACT INFO@AUTISMWOMENSNETWORK.ORG.”
An arrow with dotted lines and a green triangle leads from the contact information to a paragraph in bold letters below which says, “Autism Women’s Network is looking for a volunteer who has HTML coding skills and is familiar with Facebook apps. If you or someone you know has these skills and is interested in a volunteer position with AWN, please send us an email!”
The purple box with white letters (described above) has a dotted line and green triangle arrow leading down to another small box (white with purple letters.) Inside the box it says in all caps: “DO YOU KNOW FACEBOOK CODING? DO YOU KNOW HOW TO WORK WITH FACEBOOK APPS?”
Directly below (bottom left) it says in bold font: “Please E-mail: firstname.lastname@example.org
For more information on the Autism Women’s Network, visit www.autismwomensnetwork.org
Our org’s logo (red, pink and white dragonfly) with the letters “AWN is positioned in the bottom right corner of the image.)
I worked with AWN in the past! Let me know if you have some samples and maybe I can give a reference if you are interested!