When providers/provider groups think they are great representation of Autism issues
Come on internet
I can’t be the only person who was alarmed by the ending of rainman basically being him getting wrapped up and put “back where he belongs”. We even have institutional bias in our media!
What about that recent episode of Bones that basically framed Hodgins brother with a serious mental health disability as “belonging” in a private institution. (And it’s still an institution, even if it DOESN’T have lock down.) Like. THERE ARE LESS RESTRICTIVE SETTINGS FOR PEOPLE WITH SERIOUS MH DISABILITIES. I would know, I’ve helped design policy to help protect the rights of people in less restrictive MH settings. Just. NO. (It pissed me off too much to check but I’d bet that NAMI was their resource. I. No.)
Come on, I don’t want to get into details about these specific instances! I know someone else must have written them, and I want to talk about other ones!
I was reading Surak’s entry on Memory-Alpha
and in the Apocrypha section is the following sentence:
I just. *cackles*
The AASPIRE Healthcare Toolkit is Ready! Try it out in Study 3.
Are you on the autism spectrum?
Be the first to try out a tool that may improve your healthcare
AASPIRE is a partnership between people on the autism spectrum, researchers, healthcare providers, and family members. We have created a healthcare toolkit to try to help people on the autism spectrum get better healthcare. We now want people to try it out in real life.
You are invited to participate in our latest research study if you are an adult on the autism spectrum, live in the U.S., and have a primary care provider or regular doctor. (You may also participate if you are a support person for an adult on the autism spectrum who cannot participate him/herself.)
We will ask you to try out our online healthcare toolkit. As part of the study, you can create a personalized accommodations report to help your healthcare providers understand how to better serve you.
You will also have access to a website with information and worksheets about things like
- how to prepare for appointments,
- how to communicate better with your provider,
- how to follow up after a visit, and
- what your rights are in healthcare.
You will take a 20-minute survey before and after using the toolkit. With your permission, we’ll also ask your provider for feedback on the toolkit.
If you take part in the study, you will receive a $30 Amazon.com gift card or check.
From an email I was sent as a participant in the earlier studies. They asked that I share. The toolkit can be useful. You can make it more so.
At 4pm EST today, I’ll be joining Cecilia Breinbauer in giving an ICDL webinar called Perceived Aggression During Early Adolescence: What is Behind the Behavior and How to Prevent or Safely Respect Meltdowns. Please come join us! More information is currently on the ICDL’s home page.