Tuesday, April 22, 2014

Just ordered both #lovenotfear and Neurodivergent from Aromaleigh!

I am excited! Pretties! 

Now if only they’d do a color for ASAN as well… Is “Acceptance is an Action” too long a name? 

(links: #LoveNotFear and Neurodivergent)

Thursday, April 3, 2014
Gilding Gold for Autism Acceptance.
[a plump pale hand, fingers outstretched to show nails painted golden.]
I was getting annoyed with all the “blue nails~~~” stuff in the Autism Tag, so gold it is! Will keep painting them gold all month I think. (it was less than $2/bottle at Rite aid FYI)

Gilding Gold for Autism Acceptance.

[a plump pale hand, fingers outstretched to show nails painted golden.]

I was getting annoyed with all the “blue nails~~~” stuff in the Autism Tag, so gold it is! Will keep painting them gold all month I think. (it was less than $2/bottle at Rite aid FYI)

Friday, March 28, 2014 Tuesday, February 25, 2014

When providers/provider groups think they are great representation of Autism issues

No. 

Saturday, February 22, 2014

Come on internet

I can’t be the only person who was alarmed by the ending of rainman basically being him getting wrapped up and put “back where he belongs”. We even have institutional bias in our media! 

What about that recent episode of Bones that basically framed Hodgins brother with a  serious mental health disability as “belonging” in a private institution. (And it’s still an institution, even if it DOESN’T have lock down.) Like. THERE ARE LESS RESTRICTIVE SETTINGS FOR PEOPLE WITH SERIOUS MH DISABILITIES. I would know, I’ve helped design policy to help protect the rights of people in less restrictive MH settings. Just. NO. (It pissed me off too much to check but I’d bet that NAMI was their resource. I. No.) 

Come on, I don’t want to get into details about these specific instances! I know someone else must have written them, and I want to talk about other ones!

Wednesday, February 5, 2014

I was reading Surak’s entry on Memory-Alpha

and in the Apocrypha section is the following sentence:

In the book Orion’s Hounds, Counselor Troi wonders if Surak had the Vulcan equivalent of Asperger syndrome

I just. *cackles* 

Thursday, December 12, 2013 Sunday, December 8, 2013
boycottautismspeaks:

On December 9 we will be tweeting to AS and their many sponsors.
Hashtag your tweets with #BoycottAutismSpeaks so we can RT and please include links to our website and petition. Example tweets:
@sproutsfm Autism Speaks does not help Autistics. End your support http://boycottautismspeaks.com/why-boycott.html
@autismspeaks You can’t silence the voices speaking for #equality and #Respect We support @Boycott_AS #boycottautismspeaks #Autism #Autistic
Image Description: Blue and green image, divided diagonally. Text reads: Monday Dec. 9 Tweet for Human Rights and Social Justice #boycottautismspeaks Gaining Momentum… Find us on twitter @Boycott_AS 
Twitter handles of Autism Speaks Sponsors:
@ToysRUs@buildabear@AskCapitalOne @panerabread @panerabread @PumpItUpParty@caseysgenstore@QueensFlowers @coinstar @scentsy @ShopRiteStores @DollarGeneral @springfree@MonsterMile @sproutsfm @FedEx@NESTFragrances@FOXSports @stelladot @Gap @HomeDepot @Joes_Crab_Shack @tjmaxx @KidNaturalHero@TotalWine @PlayLSI @TsukihoshiUS @SleepHappens@WhiteCastle @Med_Claims@ZalesJewelers @Modells @U_of_Style @sevenly

boycottautismspeaks:

On December 9 we will be tweeting to AS and their many sponsors.

Hashtag your tweets with #BoycottAutismSpeaks so we can RT and please include links to our website and petition. Example tweets:

@sproutsfm Autism Speaks does not help Autistics. End your support http://boycottautismspeaks.com/why-boycott.html

@autismspeaks You can’t silence the voices speaking for #equality and #Respect We support @Boycott_AS #boycottautismspeaks #Autism #Autistic

Image Description: Blue and green image, divided diagonally. Text reads: Monday Dec. 9 Tweet for Human Rights and Social Justice #boycottautismspeaks Gaining Momentum… Find us on twitter @Boycott_AS 

Twitter handles of Autism Speaks Sponsors:

@ToysRUs
@buildabear
@AskCapitalOne 
@panerabread 
@panerabread 
@PumpItUpParty
@caseysgenstore
@QueensFlowers 
@coinstar 
@scentsy 
@ShopRiteStores 
@DollarGeneral 
@springfree
@MonsterMile 
@sproutsfm 
@FedEx
@NESTFragrances
@FOXSports 
@stelladot 
@Gap 
@HomeDepot 
@Joes_Crab_Shack 
@tjmaxx 
@KidNaturalHero
@TotalWine 
@PlayLSI 
@TsukihoshiUS 
@SleepHappens
@WhiteCastle 
@Med_Claims
@ZalesJewelers 
@Modells 
@U_of_Style 
@sevenly

Saturday, December 7, 2013 Friday, November 8, 2013

(Image description: a white graphic with a purple box with white letters angled at top left which says “Volunteer Wanted.” To the right of the purple box it says in all caps, “CONTACT INFO@AUTISMWOMENSNETWORK.ORG.”An arrow with dotted lines and a green triangle leads from the contact information to a paragraph in bold letters below which says, “Autism Women’s Network is looking for a volunteer who has HTML coding skills and is familiar with Facebook apps. If you or someone you know has these skills and is interested in a volunteer position with AWN, please send us an email!”The purple box with white letters (described above) has a dotted line and green triangle arrow leading down to another small box (white with purple letters.) Inside the box it says in all caps: “DO YOU KNOW FACEBOOK CODING? DO YOU KNOW HOW TO WORK WITH FACEBOOK APPS?”Directly below (bottom left) it says in bold font: “Please E-mail: info@autismwomensnetwork.orgFor more information on the Autism Women’s Network, visit www.autismwomensnetwork.orgOur org’s logo (red, pink and white dragonfly) with the letters “AWN is positioned in the bottom right corner of the image.)

I worked with AWN in the past! Let me know if you have some samples and maybe I can give a reference if you are interested!

(Image description: a white graphic with a purple box with white letters angled at top left which says “Volunteer Wanted.” 

To the right of the purple box it says in all caps, “CONTACT INFO@AUTISMWOMENSNETWORK.ORG.”

An arrow with dotted lines and a green triangle leads from the contact information to a paragraph in bold letters below which says, “Autism Women’s Network is looking for a volunteer who has HTML coding skills and is familiar with Facebook apps. If you or someone you know has these skills and is interested in a volunteer position with AWN, please send us an email!”

The purple box with white letters (described above) has a dotted line and green triangle arrow leading down to another small box (white with purple letters.) Inside the box it says in all caps: “DO YOU KNOW FACEBOOK CODING? DO YOU KNOW HOW TO WORK WITH FACEBOOK APPS?”

Directly below (bottom left) it says in bold font: “Please E-mail: info@autismwomensnetwork.org

For more information on the Autism Women’s Network, visit www.autismwomensnetwork.org

Our org’s logo (red, pink and white dragonfly) with the letters “AWN is positioned in the bottom right corner of the image.)

I worked with AWN in the past! Let me know if you have some samples and maybe I can give a reference if you are interested!

Friday, October 11, 2013

I’ve been having episodes where my verbal skills have been on the friz. Here’s one of them.

Note on the captions: English is exactly what came out of my mouth. Canadian English is a translation into what I was trying to get across, or as much as I can remember of it. I waited to upload and caption until I had my words back. They didn’t have an option for English- Other…

Friday, September 20, 2013

The AASPIRE Healthcare Toolkit is Ready! Try it out in Study 3.

Are you on the autism spectrum?
Be the first to try out a tool that may improve your healthcare

AASPIRE is a partnership between people on the autism spectrum, researchers, healthcare providers, and family members. We have created a healthcare toolkit to try to help people on the autism spectrum get better healthcare. We now want people to try it out in real life.

You are invited to participate in our latest research study if you are an adult on the autism spectrum, live in the U.S., and have a primary care provider or regular doctor. (You may also participate if you are a support person for an adult on the autism spectrum who cannot participate him/herself.)

We will ask you to try out our online healthcare toolkit. As part of the study, you can create a personalized accommodations report to help your healthcare providers understand how to better serve you.

You will also have access to a website with information and worksheets about things like

  • how to prepare for appointments,
  • how to communicate better with your provider,
  • how to follow up after a visit, and
  • what your rights are in healthcare.

You will take a 20-minute survey before and after using the toolkit. With your permission, we’ll also ask your provider for feedback on the toolkit.

If you take part in the study, you will receive a $30 Amazon.com gift card or check.

To learn more, please contact 
Angie at (503)725-9634  or studies@aaspire.org.
or take a short screening survey online

 

From an email I was sent as a participant in the earlier studies. They asked that I share. The toolkit can be useful. You can make it more so.

Wednesday, September 4, 2013 Wednesday, July 3, 2013 Tuesday, April 30, 2013

At 4pm EST today, I’ll be joining Cecilia Breinbauer in giving an ICDL webinar called Perceived Aggression During Early Adolescence: What is Behind the Behavior and How to Prevent or Safely Respect Meltdowns. Please come join us! More information is currently on the ICDL’s home page.